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Signifor® LAR (pasireotide) for injectable suspension

Patient Resources

Below are websites that offer additional information about acromegaly and patient support groups.*

*Novartis Pharmaceuticals Corporation may make donations to these support groups and organizations. However, Novartis Pharmaceuticals Corporation has no control over third-party websites and makes no representation as to the accuracy, completeness, adequacy, or any other aspects of the information contained on such websites.

THE PITUITARY NETWORK ASSOCIATION
The Pituitary Network Association (PNA) is an international nonprofit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.
http://www.pituitary.org or
Call 1-805-499-9973

THE NEUROENDOCRINE CLINICAL CENTER OF MASSACHUSETTS GENERAL HOSPITAL
Information on acromegaly and other endocrine conditions. Consultations available.
http://pituitary.mgh.harvard.edu/ or
Call 617-726-7948

THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
NORD includes acromegaly in its Rare Disease Database and offers free downloads of reports.
http://www.rarediseases.org/ or
Call (203) 744-0100

THE HORMONE HEALTH NETWORK
The Hormone Health Network is the public education affiliate of The Endocrine Society and is a leading source of hormone-related health information.
http://www.hormone.org or
Call 1-800-HORMONE

ACROMEGALY COMMUNITY
Acromegaly Community provides emotional and communal support for people touched by acromegaly.
http://acromegalycommunity.com/

Help Talking With Your Doctor

Only your doctor can tell you if Signifor LAR is right for you. Answering the following questions ahead of time may be helpful, as they could help your doctor better understand your experience:

  1. If you wear a ring, has it become too small for you, or required you to change to a larger size?
  2. Have you experienced frequent headaches?
  3. Do you find that you seem to sweat a lot?
  4. Do you have joint pain?
  5. Are you experiencing tingling in your hands or feet?

Describe the symptoms you have been experiencing and how long you have had them. Try to be specific about when you first noticed these symptoms. This will help your doctor decide what to do next, such as a blood test or other diagnostic tool.